Contact us

Please be aware that the DecodeME email can only be used to change participant contact details and consents.

Going forward this email will only be reviewed infrequently and we will not be able to reply to questions and other enquiries.

If you urgently need help, please do not email DecodeME. To get support the following can be contacted directly.

For health concerns:

If you have any health concerns, please consult or call your GP or other qualified healthcare provider. 

For urgent issues, please call NHS 111 or 999 for life threatening emergencies. 

The DecodeME website cannot and does not contain medical/health advice. The information is provided for general informational and educational purposes only and is not a substitute for professional advice. Before taking any actions based upon such information, we encourage you to consult with the appropriate professionals. We do not provide any kind of medical or health advice.

To talk about how you are feeling:

Further support page

For information and resources about living with ME, including navigating access to services and support:

https://www.actionforme.org.uk/supporting-you/

You can also get in touch with Action for ME by:

Calling them on  0117 927 9551 or emailing infosupport@actionforme.org.uk

If you are a participant in the DecodeME study and wish to change your contact details or consents, you can do so by emailing us at decodeme@ed.ac.uk

Please detail in your message your name, date of birth, and what change you wish to make.

Please note that we will not be able to reply to any messages received.   

If you are a researcher wishing to apply for access to DecodeME data, please visit our Data Access for Researchers page for more details of the data available and how to apply.  

For press enquiries: Please contact the University of Edinburgh press office at press.office@ed.ac.uk

For all other enquiries, please email Action for ME at infosupport@actionforme.org.uk