The world's largest ME/CFS study DecodeME aimed to find genetic causes of why people become ill with Myalgic Encephalomyelitis (ME) / Chronic Fatigue Syndrome (CFS). The study will help us understand the disease and ultimately find treatments. Read our initial DNA results Blog What's next for DecodeME?Initial DecodeME DNA resultsX marks the spot where ME/CFS biology can be discoveredData access process launched Webinars Initial DNA results webinarSecond questionnaire and data access webinar Social media Follow DecodeME on Facebook, X, Instagram and Bluesky Key genetic differences found in people with ME/CFS DecodeME has found that your genes contribute to your chances of developing ME/CFS. We’ve identified eight genetic signals where people with ME/CFS differ from those without, linked to the immune and nervous systems. These landmark findings reflect the lived experience of thousands of people with ME/CFS, providing validation and exciting new avenues for research.Thank you to all our participants and supporters who made this possible! Read our news blog Watch our video message Read our science blog: X marks the spot where ME/CFS biology can be discoveredRead the preprint scientific paper Access the summary GWAS statistics Data access for researchers To accelerate research towards possible diagnostic tests and treatments for ME/CFS, DecodeME has built the world’s largest data set on ME/CFS as a managed access resource for future research projects.We are now inviting applications from researchers who are interested in accessing the DecodeME data, samples or cohort.Researchers can also request for participants to be re-contacted if further data or samples are required for their research studies. Find about our data and how to access it This article was published on 2025-08-19
