Recruitment will happen in two phases. Phase 1 opens on January 31 for around 550 people. Once we’re sure everything is running smoothly, we’ll open the study for everyone with ME/CFS in the UK (Phase 2). Recruitment will happen in two phases. First, over 50 people with severe ME/CFS will be invited to take part. They will complete the questionnaire on paper or via telephone (with support from the 25% ME Group).Then we’ll invite up to 500 of online participants, chosen randomly, to take part in the study online.This testing of our paper, telephone and online processes means we can make any improvements based on patients’ feedback. With over 30,000 people waiting to take part, we need to make sure the process is as smooth and inclusive as possible and the right support is in place.Once we’ve completed this process, we will let you all know we’re ready for the full launch.You do not need to do anything for now, we’ll be in touch when it’s time for you to take part and we’ll keep you updated on the process.Thank you so much for your patience. We can’t wait to share the study with you soon. Tags 2022 Publication date 20 Jan, 2022
